with the world at your feet, your smile gives strength, small you have nothing, you're great, God bless you
Nancy said:November 17, 2012 7:46 pm PST
Thank you for sharing your story. A friend is pregnant with a beautiful little girl who will be born with TOF. Reading your story gives hope and we thank you! You are an amazing little guy and I pray that God will bless you with a long and healthy life! Keeping you lifted in prayer.
Nancy C. Neumann said:November 17, 2012 6:15 am PST
I have a 22 year old daughter with tetralogy of Fallot. Her name is Ericka. She is a nursing student and married for 2 years. I always loved to hear from parents of tet babies. Her surgeon Ann Arbor. God Bless you. Please free to email me at email@example.com if you ever need someone to talk to. She has had 1 closed heart surgery and 3 open heart. She is a wonderful girl with a heart for babies due to her condition. Her cardiologist also says that she will be able to have children of her own some day. Enjoy your time with him. I was always stressed out and feared losing Ericka and here we are 22 years later. He will have a wonderful life.. Nancy Neumann
Laci Pippin said:November 15, 2012 4:45 pm PST
What a handsome boy you are Joey!!! My son Caleb was born a month ago and we found out after delivery he has TOF...he will undergo surgery in January. Thanks for sharing your story...it definitely gives us hope! Your son and family will be in our prayers for continued success and good health!
My Name is Crystal Kessler, I am born with TOF. When my dad told me to read this, It made me realize that I am not the only one out their with TOF. I had my first open heart sergery when I was 16 months old and again when I was 13 years old on 9/11 a year after the twin towers got knocked down, You are a special baby Joey. Don't let other kids make fun of you (Just ignore them-they are insecure about themselfs if they make fun of you for your heart problem something that you had no controle over) As I write this letter to you I am 19 years old turning 20 soon the doctor said I might need another sergery but not sure when that one will be. In middle school and highschool I have been made fun of for it, But it got better in college, Always wear your breaclet Joey it's nothing to be ashamed of, I've always known that but I had alot of trouble in school, Hopefully kids would know what TOF is and that you wont be made fun of for it! ~ Crystal.
Good Luck in the future Joey :)
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